Resources
Disease Specific Organizations
The following are disease-specific organizations for aplastic anemia and for bone marrow failure syndromes that are similar, or can present with symptoms of aplastic anemia:
AA&MDS International Foundation
Diamond-Blackfan Anemia Foundation
Fanconi Anemia Research Fund
National Marrow Donor Program/Be The Match (NMDP)
National Organization for Rare Disorders
Severe Chronic Neutropenia International Registry (SCNIR)
Shwachman Diamond Syndrome Foundation
Team Telomere
Diamond-Blackfan Anemia Foundation
Fanconi Anemia Research Fund
National Marrow Donor Program/Be The Match (NMDP)
National Organization for Rare Disorders
Severe Chronic Neutropenia International Registry (SCNIR)
Shwachman Diamond Syndrome Foundation
Team Telomere
Professional Organizations
The following are professional organizations for physicians who treat children with aplastic anemia:
American Society for Transplantation and Cellular Therapy (ASTCT)
American Society of Hematology (ASH)
American Society of Pediatric Hematology/Oncology (ASPHO)
Transplantation & Cellular Therapy (TCT) Meetings
American Society of Hematology (ASH)
American Society of Pediatric Hematology/Oncology (ASPHO)
Transplantation & Cellular Therapy (TCT) Meetings
Research Consortia
The following are groups of researchers who also study disorders affecting bone marrow function:
Blood and Marrow Transplant Clinical Trials Network (BMT CTN)
Children's Oncology Group (COG)
Center for International Blood and Marrow Transplant Research (CIBMTR)
North American Immuno-Hematology Clinical Education & Research (NICER) Consortium
Pediatric Transplantation and Cellular Therapy Consortium (PTCTC)
Children's Oncology Group (COG)
Center for International Blood and Marrow Transplant Research (CIBMTR)
North American Immuno-Hematology Clinical Education & Research (NICER) Consortium
Pediatric Transplantation and Cellular Therapy Consortium (PTCTC)