Resources
Disease Specific Organizations
The following are disease-specific organizations for aplastic anemia and for bone marrow failure syndromes that are similar, or can present with symptoms of aplastic anemia:
AA&MDS International Foundation
Diamond-Blackfan Anemia Foundation
Fanconi Anemia Research Fund
National Marrow Donor Program/Be The Match (NMDP)
National Organization for Rare Disorders
SAMD9/L Foundation
Severe Chronic Neutropenia International Registry (SCNIR)
Shwachman Diamond Syndrome Foundation
Team Telomere
Professional Organizations
The following are professional organizations for physicians who treat children with aplastic anemia:
American Society for Transplantation and Cellular Therapy (ASTCT)
American Society of Hematology (ASH)
American Society of Pediatric Hematology/Oncology (ASPHO)
Transplantation & Cellular Therapy (TCT) Meetings
Research Consortia
The following are groups of researchers who also study disorders affecting bone marrow function:
Blood and Marrow Transplant Clinical Trials Network (BMT CTN)
Children's Oncology Group (COG)
Center for International Blood and Marrow Transplant Research (CIBMTR)
North American Immuno-Hematology Clinical Education & Research (NICER) Consortium
Pediatric Transplantation and Cellular Therapy Consortium (PTCTC)